Question: My sister's infant has tortocollis and.....?

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Answer #1:

I'm sorry to hear this about this little baby. Hopefully she pulls through everything ok.
I would suggest to your sister, to immediately get a second opinion and to bring this up to the doctor. She must be firm with the doctor and not stop until they get a final diagnosis and everything is confirmed. With tortocollis I heard it can take up to the age of 2 to fully workout with extensive therapy. But Idk because every baby is different. Good luck

Answer #2:

First of all, how old is her daughter??

Second, torticollis doesn't cause cerebral palsy or autism.

Third, my baby used to flap her hands when she was a baby. All babies do it.. Unless she's already 2 years old..

Answer #3:

I found a website that talks about early detection.
"A child over 6 months with cerebral palsy might:
- continue to have difficulty controlling head when picked up
- reach with only one hand while keeping the other in a fist"
Click Here
I also read on a couple different forums of children who were diagnosed before 6 months.
Your sister should just tell her doctor she wants him to properly rule it out. To "convince" her it is not cerebral palsy. She could even print out the symptoms and highlight the ones her daughter is exhibiting so her doctor will get a clear picture that she has been investigating it and needs to know the Exact reason why it can't be CP and that anything less just won't do.
If it is Torticollis your sister should just continue with the physical therapy. In rare cases if it does not work out " a TOT Collar is sometimes used. About 5–10% require "surgical release" of the muscle if stretching fails".
Here is something I read and I will copy paste it in case it means anything to you...

"Other less common causes such as tumors, infections, ophthalmologic problems and other abnormalities should be ruled out. For example, ocular torticollis due to cranial nerve IV palsy should not be treated with physical therapy. In this situation, the torticollis is a neurologic adaptation designed to maintain binocularity. Treatment should be targeted at the extraocular muscle imbalance."
I don't know how much I trust that website (wiki), especially considering that that quote alone had 6 words that needed to be spell checked. =P
Click Here

Hope everything works out and keep us posted!





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